I made a mistake...

Awhile back, I told myself and my mother, that I will tell her when her appointments are on the day of it. Recently I didn't do that and the repercussion were catastrophic! 

It was early afternoon when I mention the appointment for the next day, and she needed to know what time. Of course it was late morning, so we can get up at our normal times that morning. However, she went to preparing mode and it was no stopping her. She stress, panic, worried, fear and so many more emotions.

So we (yes she made it hard for me to sleep too) didn't get much sleep that night. Although she wasn't recognizing me, she went with me to her appointment. Yes, was extremely tired, but I could not get her to nap when she had finally settled down. Of course, sundowning showed up that night and it took a while to get her to go to bed. 

The thing about a traumatic experience like that, it that several days for her brain to get back align where she is somewhat normal. But the following weeks, other things happen and the sundowning was becoming intense everyday. Now, it's getting harder for me to make a trip to the store and other places. The length of time can only be an hour, before her mind goes into worry mode. 

The bottom line is, wait until the day of her appointment to let her know. All appointments will be late morning if possible!

No such thing as relax...

Had a good day...

We had one good day without experiencing sundowning. I know I wouldn't wish this disease on anyone, not even an enemy. But this sundowning is starting to get on my last nerve!

One morning, we didn't start off on the right foot and I needed to walk away and pray. As I walked into another room, my pastor called to see how we were doing. Let me tell you, God is truly watching us and He knew I needed someone to pray for me at that moment.

In saying that, He knows what our love ones need and He places us there for them, even when we have no clue of what we're doing. We are all imperfect. Yes, there is help out there and most can not afford it or qualify for the help. There always seem to be something attached to what appears to be free, that you won't be able to qualify for.

This week has not been that bad so far. Am I irritated at times, yes and I got to deal with my impatientness. There are so many out there trying to tell you how to handle your love one, but guess what, each one is different.  My mother, although was married, but was very independent, strong willed, worried and stress too much over the years, and it is even stronger now with dementia. So I am at a loss, and I guess that is why I make so many mistakes with her.

Waiting for a change...

Day after Day...

Each morning when I wake up, I pray my mother will know who I am when she sees me. Since New Years Eve, this has been the norm and I just can't get use to it. To be honest, I hate it, for it was the one thing I prayed for not to happen. Then again, at least it's not an all day thing either. Yes, there has been days that it was all day, but to few to count.

Sundowning is a part of this terrible disease that I hate the most!! The confusion, agitation, hallucinations and being told you're a liar constantly,  would drive anyone crazy. But the worst part is when it continues into the next day. I am told that it is strange that she can remember things that happen the day before occasionally. Of course each person is different.

The other night, she told me how I said we were going to the other house that night. She gave me a play by play of the conversation that never happened, and that night was very mild and she went to bed at a decent time too. However, we had one night recently with no sundowning! You can only imagine how much that made me feel.

I am praying for more calmer days, especially nights.  But I am thankful for getting restful sleep 95% of the time.

Time for a change...

Are we going home...

Every day she ask me that question and everyday I tell her the same thing, "we are staying here". But now I see, her brain is processing what I said differently, and the difference is, "yes". Although, at times she accept what I tell her just fine, and other times she ask "why aren't we going?" No matter which way she responds, she get angry, agitated, confused, upset and more.

Every night, she goes to her room, get out her duffle and canvas bag, to put her night clothes in, and put her toiletries in a plastic bag. I do my best to watch her every moment, so when she can't find things, I know where they are. 

This morning, I discovered her dish towel she use for her hand was missing. I go to where she had it last and it wasn't there. She too did not know, when she needed it this morning. Well, this afternoon the towel showed up, and I believe she did not recognize it, when she unfolded some facial tissues, she found the towel wrapped in it!

I believe the different sleep patterns has now effected her already deteriorating brain. One major change is not recognizing me first thing in the mornings. This particular morning, she greeted me with a hug and a kiss, so I assume she was seeing me, but later that afternoon she tells me how "that woman" went to the grocery store. Now I am confused because this means she wasn't seeing me as her mother. But why did she kiss a stranger?

This thing truly has her brain so mixed up. I feel that the lack of good sleep is the driving force behind what is going on with her. We had a doctor appointment and she confirmed my thought process. So when we got back home, she admitted that she was sleepy and I got her to recline in her chair. She actually went to sleep and slept for an hour and half. Although it was late afternoon, I was to happy to see it! I pray this is a fresh beginning.

Time for a change...

History does repeat itself...

A week or so ago, mother and I had a 11:30am hair appointment.  My only issue was if she would recognize me that morning, so that we will be able to go. She knew about the appointment, but I quickly learned, that was not a good ideal!!

In the past, before the dementia diagnosis, mother would stress so much about getting to her appointments on time, that she would not sleep the night before. I thought that was no longer in her system now, but it still is!!! Our appointment was at 11:30am, she tried twice that night to get ready to go for the appointment!

Neither one of us got any sleep that night. Of course that morning she was still stressing about the time of the appointment. And with that, she couldn't read the clock properly either! It's 7 in the morning and she thought our appointment was at 9! STOP THE MADNESS!!

The entire day was not good. Keep in mind, she has been awake since 6am the previous day, so 24 hours has passed and now she refused, or not willing to nap, once we got back from the appointment. It was after 7pm that night when she finally went to bed. Exhausted to the point that I had to help her find her room and more.

Dementia has intensified the behavioral patterns she has now, which now makes it harder on a mind that is now deteriorating. Rest and sleep can slow the process, but how can you get them to understand that?

Time for a change...

Fresh Air...

Since moving back home, I find myself sitting out on the front porch every morning, when weather allows. In my younger days, we spend so much time outside and sitting on each other's porch. Just talking, laughing and playing. And I just love this. I love it so much. And when I bought my house well, when I was looking for a home, I was looking for one with a front porch. Unfortunately, you had to live in a certain area to really get a porch. Because further out the houses, are more modern, and the porch was no longer there, they had stoops to sit on.

For those with dementia, fresh air is very good for them. Exercise is good for them, just regular everyday routines is good. However, with my mother, I have some issues getting her to do certain things. Especially sitting out on the front porch. She surprised me one day, asking me did I want to go out on the porch with her? Trust me, I jumped up and went with her. Can you believe we sat out on that porch for 5 hours!  Of course, we had some hiccups here and there, because with Dementia, you're just gonna have it, it's not gonna be a day without some type of little up-and-down. But it was still a good day.

There is one thing I notice with her after sitting on the porch and getting the fresh air was that she was sleeping better. We were having a little better evening, once we go inside too, things were a little calmer. Like I mention, you still have some ups and down. But at least they weren't major (that's what sundownin is).  I am working hard to get her back on the porch. Especially when the weather is very good, we had a couple of cooler days. Because it had been cold or cool  she hasn't want to go out because she thinks every day is cool outside but we're going to get out there as much as possible rbefore the summer ends.

Need more of that...

Caregiver life...

Until you have to pause a good portion of your life, to care for a parent(s), grandparent(s) or a love one, you won't know the decision and sacrifices a person has to make to become a caregiver to someone!

To be honest, I didn't believe the doctor when she told me, mom won't be able to live alone. Not knowing what Dementia was and how it affects the person that has it, and telling me someone needs to stay with her. My mother at that time was still able to take care of herself and still can for the most part. So why did I need to stay with her?

One night, I decided to go home and go back after I went to church. Well I got back to the house, I quickly learned that being gone all night was a big mistake. I found her in a state of confusion and fear. Trust me, I did not do that again. It hurt me seeing her that way, to the point that I was scared that I may have hurt her in some way. That Sunday in early 2025, my life was no longer mine.

Here is the crazy part, I had to change the way I lived my life, for my mother prior to being diagnosed with Dementia. My mother would worry about me, especially at night. If I had somewhere to go at night, I learned she wouldn't go to bed until I got back home, and call her to let her know I was in the house. It was so bad that she would not go to bed until she heard from me. 

Since moving back home with her, I have learned just how deep this worrying and fear she has, been going on for many years, and as far back as childhood. My mother has so much fear and worry in her still with this Dementia to a point it is scary for me. You would think she would relax now that I am living with her, but that is not the case.

I wish it would stop, but I know it won't until the final call from the Lord. So I got to find a way to adjust to this change and the others that may or may not come.

Grace and mercy goes with us...