With Lewy Body, there is sleeping issues, hallucinations, memory problems and with the Parkinson, movement issues. Yes, she has all of that, but with some medication, it helps lowers all of the symptoms, also along with good rest.
Without being well rested at night she may have some night terrors, screaming or yelling, along with hallucinations, which often times become a problem, especially in the mornings.
When she does not recognize me in the mornings or any other time during the day, she will not leave the house or go with me anywhere. The worst part is when she search the house looking for me, the anxiety kicks in and no amount of talking will calm her down. This is one of the reason why sleep is so important to those with Lewy Body.
However the Parkinson is affecting her movement as in walking, posture and balance.
Now that I been back home with her, I am learning so much of what she is going through within her mind, fear, worry, anxiety and stress. All this would affect your mind too. One thing for sure, lewy body makes the phrase "out of sight, out of mind", a true reality!
Everyday is different...
Some days are calm
Some days are chaotic
Some days are normal
Some days are shared with hallucinations
Some days are a roller-coaster ride
But we're here and I am still learning how to move within those days. Did I want to just leave and not come back? Yes!!! Would I actually leave? No!!! God said, "Honour thy father and thy mother: that thy days may be long upon the land which the LORD thy God giveth thee." I have done this all my life and will continue doing so.
So this morning, she greeted me with a smile, kiss and hug. I needed more mornings like this, and I asked God for more! 💞
Life be Lifin...
